People Are Losing Jobs, Health, and Years of Their Life — And Still Being Misdiagnosed

This isn’t just an allergy. And people are paying the price.

When most people hear “alpha-gal,” they think:

“Oh, that’s the tick thing where you can’t eat red meat.”

But what we’re seeing from real data — from real people — tells a very different story.

70% of people in our dataset were MISDIAGNOSED

Let that sink in.

More than half of people suffering from symptoms weren’t told what they actually had.

Instead, they were told:

• Anxiety

• IBS

• Autoimmune disorders

• Even MS

And they were treated for conditions they didn’t have.

And it doesn’t stop there…

👉 56.9% waited more than 6 months for a diagnosis👉 Many waited years

That’s months — or years — of:

• Confusion

• Fear

• Wrong medications

• Worsening symptoms

• 
  

“I couldn’t work for a year.”

That’s not a statistic.That’s a real comment from someone who filled out the survey.

We are seeing people report:

• Losing jobs

• Losing stability

• Losing their sense of normal life

Not because alpha-gal is rare…But because it’s not being recognized

And here’s what changes everything…

👉 68% of people reported neurological symptoms

Not just allergic reactions.

We’re talking about:

• Brain fog

• Tremors

• Anxiety

• Memory issues

• Mental fatigue

These are the kinds of symptoms that:

• Get dismissed

• Get misdiagnosed

• Get blamed on something else

Now let’s talk about the theory…

There’s a belief that alpha-gal becomes severe over time —that it builds up in your system before causing serious reactions.

But here’s the problem:

👉 Children are experiencing severe reactions too

Our data includes kids — with serious, even anaphylactic reactions

Children don’t have decades of exposure.

So what does that tell us?

We may be looking at something more complex than we thought

This is not just happening in one place

We are receiving responses from:

• United States

• Australia

• Canada

• Sweden

• Africa

This is global

And for every person who filled out the survey…there are many more who haven’t found answers yet.

Why this matters

This isn’t about fear.

It’s about recognition.

Because right now:

• People are being misdiagnosed

• People are being dismissed

• People are suffering longer than they should

  
  

And here’s the hope

This data is growing every day.

Every response:

• strengthens the evidence

• increases awareness

• brings us closer to answers

If you’ve experienced this — you are not alone

And if you haven’t been diagnosed yet…this might be the missing piece.

Help us push this forward

We are building the largest patient-reported dataset on alpha-gal.

👉 Take the survey here:www.tickbitedata.com