👉 Take the Alpha-gal Survey
👉 Take the Alpha-gal Syndrome Patient Experience & Outcomes Survey
👉 Take the Alpha-gal Syndrome Ongoing Symptom Survey
👉 View the Data
Tick Bite Data is a 501(c)(3) nonprofit organization dedicated to advancing awareness, education, and patient-reported research surrounding Alpha-gal Syndrome and tick-borne illnesses.
Through the collection and analysis of thousands of patient surveys from around the world, we work to identify emerging patterns, highlight diagnostic challenges, and better understand the real-world impact these conditions have on individuals and families.
Our findings have revealed significant diagnostic delays, widespread misdiagnosis, reactions beyond red meat, and a broad range of symptoms affecting multiple body systems. By sharing patient-reported data openly and transparently, we aim to support awareness efforts, inform future research, and help ensure that patient experiences contribute meaningfully to healthcare and public health conversations.
Every survey tells a story. Every data point represents a person. Together, those stories are helping build a clearer picture of Alpha-gal Syndrome.